Wednesday, December 31, 2014

Longest Wait Ever!

Oh, this is kind of a vent and kind of an update. My doctor, Dr. Ward, is out of town this week. So another doctor was covering for him. I had an appointment with her at 11:40. But by the time she actually got to the room it was 2:00!! Are you serious! And I know that she had two other patients waiting that long as well. Just regular appointments. Apparently the patient two ahead of me took an extremely long time. Why couldn't the doctor just send in a resident or fellow to see how we were doing? That's what ended up happening in the end anyway, after I had my clinical trail coordinator (that had to sit forever waiting with me) track someone down because I needed to leave. Her fellow spent about five-ten minutes with me but I couldn't leave until she technically saw me. She came in for literally less than two minutes, no apology for wait time either. What a gigantic waste of my day.

No really. When she got to be 30 mins behind, couldn't she have sent her fellow in at that time just to do the initial exam? When he found out that it would only take 2 mins, couldn't she have found a way to step into the room, say hello, collect her pay check, and then go back to the patient with the big problem?? Blah.

In the end, they gave me a prescription for a medication that is supposed to be very effective for nausea. Like, they said they've never seen anyone still sick after they've taken it. Problem, because there's always a problem, it isn't FDA approved for treating nausea. So a lot of the time insurance won't cover it for this use. And of course my insurance is one that is having a problem. Hopefully we straighten it out because it would be very nice not to be so sick.

Next, they are setting up an order for IV fluids at an office in Provo. The order will be for every other day if needed. They are hoping that with the new meds, I won't need it. But if insurance won't cover the meds, I think it's like $250 out of pocket! If there are enough pills to get me through the rest of my chemo, maybe it would be worth it. 

And by the way, the fellow set up the new meds and IV fluids. The doctor stepped in, basically said "sounds good", and that was it! 

Also, MY CHEMO IS PUSHED BACK AGAIN! It had been moved to this Friday, but it is now going to be next Tuesday. I'm so glad! It will give me a chance to really be ok before starting again. I realize that this inconveniences some of my helpers. I'm sorry! They moved it to Tuesday in order to coordinate my appointments. They are trying to get as many appts in on one day as possible. If I went this Friday, it would mean continuing to have doctor appts one day and then infusion another day. And that would mean more trips to the U and more need for babysitters. Oh and more gas money. So hopefully my helpers will forgive me one last time as I have to reschedule babysitters and meals again. Sorry! I love you all!!

Now I'll try to enjoy my New Year sickness free.

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